I made a photo containing one image of the small ones’ skin on steroids in November last year. And progress since, unfortunately I didn’t get one April 20th on the first day of new beginnings to the most recent 8th Aug 2013. Where he is feeling softer and less dry, more importantly we have been sleeping better! After almost 2 years of not sleeping through again I have been enjoying his later sleeps and actual sleep instead of waking up every half hour. His days have also been a lot happier because I’m not yelling to not scratch and he isn’t scratching – he has this issue he can dig and dig and dig until he is bleeding and then further as if he doesn’t even realise he is pouring with blood. Thank the Gods this has decreased!!
It occurred to me to state what I DO use now, I have said what I don’t use so it makes sense to put what I do use right?
Topical Steroid Withdrawal treatment
Epaderm ointment. 2kg a week.
Coconut oil (brilliant to heal open wounds)
Tea tree oil (diluted) for open wounds I worry may be infected
I am going to Wales on Monday. I am rather excited, too the South Wales Valleys for this city girl, for five whole days. I love the language and I do love the accents of Wales. I am going to see my man. I am super excited. Finally be in his arms ❤ Five full days with him whilst the small one stays home with grandma – I desperately need this break.
My son has been suffering through topical steroid withdrawal since April 20th, he is three years old, and had been on steroids EXACTLY three years by this point. I came across ITSAN and decided to try this, he shown all the signs of topical steroid addiction.
It has been a struggle, and we are only 3 months in, however he is getting better. But emotionally challenging. However, I received this book in the post, within 20 minutes of opening it, we had read it twice. He related himself to Billy. The red skin, the itch, the dryness. It has been so amazing being able to read this book and use Billy and the scratchy monster to help him realise he IS and will heal, he will fight this monster make him go away rather than keep feeding him. It’s a beautiful book and I urge EVERYONE to read this
I am afraid I left for longer than I thought, however I’ve been having issues. The man of my life (I guess that’s the small one now? I have found a new *adult* man of my life now!) had severe eczema, which turned into Topical Steroid Addiction. To which I found the International Topical Steroid Addiction Network. They’re an absolute Godsend. The small man has been off steroids since April 20th 2013 – a whole three years of steroids murdering his poor body. He eventually – from Dec 2012 got to the point he had to be on steroids EVERY DAY, more than 24 hours off made him look like a burns victim – it was horrendous.
The first 6 weeks of his withdrawal were awful, I didn’t think we could cope, but we have and we do have a long way to go. I don’t remember the last time we slept a whole night. But it is getting better! I even have a couple photos, which I need to update for this month though.